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Submission Number: 8
Submission ID: 728
Submission UUID: 44ed36ad-d14b-4c6d-bf9e-24e78b1f0420
Submission URI: /2025/abstracts

Created: Wed, 03/12/2025 - 09:55
Completed: Wed, 03/12/2025 - 10:17
Changed: Tue, 08/12/2025 - 13:10

Remote IP address: 41.193.171.108
Submitted by: Anonymous
Language: English

Is draft: No
Current page: Complete
Webform: Abstract
Title Prof.
Lastname Van wyk
Firstname Carlien
eMail Carlien.VanWyk@nwu.ac.za
Mobile 0829406690
Institution North west university
Biosketch Prof Carlien van Wyk is the Acting Research Director at COMPRES (Community Psychosocial Research), North-West University, South Africa. She holds a PhD in Social Work. Her research focuses on children’s participation from a children’s rights perspective, exploring ways to meaningfully involve children in matters that affect their lives. She has published in peer-reviewed journals and contributes actively to scholarly and policy discussions on child rights and sustainable interventions. She oversees interdisciplinary research initiatives that aim to create tangible impact in communities. She also facilitates training in children's participation, empowering individuals and organizations to adopt rights-based approaches.
Is there a Second Presenter? Yes
Title Dr.
Lastname Mathe
Firstname Penelope
eMail penelope.mathe@yahoo.com
Mobile 0678731684
Institution North West University
Biosketch Dr Penelope Mathe embarked on her professional journey in social work by enrolling in the BA Social Work program at the University of South Africa. Upon completing her degree, Penelope joined the Soweto Hospice as a palliative care social worker. Her commitment to advancing her expertise in palliative care led her to pursue a Master's degree in Social Work, which she successfully completed in 2014 at North-West University's Potchefstroom Campus. Her innovative work earned her opportunities to present her Master's paper at both local and international palliative care conferences, where she was recognized for her significant contributions to the field. Dr Penelope Mathe currently works at Hospice Wits as a palliative care social worker. She contributes to palliative care discussions through her published articles. Her work has been featured in the Association of Palliative Care Centres of South Africa and the International Journal on Psychosocial Palliative Care Issues. She completed her PhD in Social Work in 2024 where she developed a much needed model to guide community health workers in ensuring that children with life-limiting illnesses can actively participate in decisions affecting their care.
Is there a Third Presenter? No
Title of Presentatation A community based practice model to facilitate children's participation
Theme Selection THEME 2: Social Work and the Achievement of Sustainable Development Goals (SDGs)
Subtheme TWO Selection SUB 2.3 Work with special and vulnerable populations (children, families, women, older persons, LGBTQIA+ etc).
Select your Presentation Type Oral Presentation
Abstract While research on children’s participation has grown globally and in South Africa, limited attention has been given to community-based paediatric palliative care. Children living with life-limiting illnesses and community health workers face significant challenges in this context, underscoring the need for supportive practice models. This study aimed to address this gap by developing a practice model that supports community health workers in facilitating children’s participation.
Ethical clearance was obtained from the Health Research Ethics Committee of North-West University (NWU-00426-19A1) and the North West Department of Health. A qualitative descriptive design, guided by the Design and Development model, was employed. Purposive and snowball sampling techniques were used to recruit participants (community health workers and experts). Data was collected through focus groups and semi-structured interviews and analysed using content analysis.
Phase 1 identified key challenges to children’s participation, forming the foundation for model development. Phases 2 and 3 involved gathering diverse perspectives and synthesising them into a draft model. In Phase 4, the model was refined to ensure its practical relevance and responsiveness to the needs of children and community health workers in paediatric palliative care.
The resulting model aims to enhance meaningful participation of children within community-based paediatric palliative care. By addressing the specific barriers experienced by both children and frontline health workers, the model offers a practical and context-sensitive framework for improving engagement. Its iterative development process, informed by in-depth research and stakeholder input, ensures its applicability in real-world settings and its value in strengthening child-centred care.
Title Dr
Firstname Khosi
Lastname Kubeka
Does the Abstract fit the selected Theme? Yes
What Area does this Abstract Focus on? Education
Status Accepted
Title Prof
Firstname HEILETJE MARILI
Lastname WILLIAMS
Does the Abstract fit the selected Theme? Yes
What Area does this Abstract Focus on? Education
Status Accepted